Terrible night with my back

I have been really busy, watching my nephew and getting ready for my one only son is getting marry. They are going to a JP, then on May 17, we are going to have a small reception for them. I wish I could say its a happy time, but the future in-law of my son feels that their daughter should wait till she has been divorce for 3 years. She has been divorce for 18 months, she has an 18 months old baby from that marriage. My son and his future are both 32 years old, they were high school sweethearts and found themselves back together about a year ago. My son loves the baby and plans on adopting her in a year after they have been married. I only have one son and I am thrilled, but with her parents it's making it tough. But just like everything else we will make it.
I got a call from the Dr yesterday and got a scare that me that I would have to pay 20 percent of the total procedure. Starting with 1200.00 for the leads, this would be my part. Now the hospital bill could be over40,000 with me paying 20 percent of that. I was disappointed with and can not afford to pay for this. I called my insurance and found out that my out of pocket expensive for the year is 3000.00 and so far I have spend 1500. So the good news is my cost for the procedure could not be over 1500. So now I wait for the date to have it done and hopefully it won't interfere with my son's wedding and reception.
Today I am going to my general Dr for my pre-op check-up, hopefully everything will go okay.
My older nephew is moving home tomorrow back to GA, and in the next couple months my mom will be coming to move in with us. Life keeps moving on and my front door is a revolving doors for my family.
Well  I went and saw my primary DR and was cleared for surgery.
I just made reservation for my son and his future wife a honeymoon night at Disney for one night. I think they deserve it with all the sh... A's mother is putting them through, so I get to babysit my granddaughter for the evening.
The pain in my back hasn't gotten any better today. Hopefully tomorrow it will be better.
Time close for the night!!!

Trip to the hospital with my mom

Well what started out as a normal day took a turn for other plans about 10:15 AM this morning with my mom took a tumble and cut her arm. After trying to get hold of me and of course I was at my SIL house getting ready to go to the library, mom got hold of Jeff (my younger brother), who is working over at Orlando and was trying to find someone to help our mom. Once mom goes down she had artificial hips and knees and can not get up by herself. Well my brother reached his wife as we were walking out the door to go to the library. Luck has that my mom just lives a block away from us, so we went to her house got her on her feet and got her the car and headed for Port St. John to a walk-in clinic that said it would be an hour wait and they didn't take her insurance. So we got back in the car and head south to Rockledge to our local hospital. We got in and out within hour which was wonderful for us. My mom who has been a nurse for over 65 years, She has forgotten how busy it gets and she was very impatience with the staff. Yet we did get out of there in less then an hour or so. We went to Arby's and ate lunch and then I took her home.
I put my 4 years old nephew down for his nap and I got a rest period, but for a short while I had to go and help mom make her bed.
I then got Rory up from his nap and got him ready for Take won, first time I had to get him dress all by myself. He did get his first blue star, which he was happy about.
Came home now my older nephew isn't feeling good, so hopefully whatever he got won't go through the whole household. Of course my husband left two weeks to his  camping in our RV.
Not much else is going on for right now. Just going to sit down and relax.          

2 days since removal of SCS

Good morning world!! Second day without the SCS and of course the pain has started again. Was hoping it would maybe wait a couple days, but NO!!! It came back to haunt me even worst now.
Not much going on today, John is leaving tomorrow for his two weeks of camping up in northern Florida. Tomorrow we go to the library and out to lunch with my nephew and his mom.
Not much to talk about today.

The SCS was remove today

Good afternoon just got back from the DR and he remove the temporary SCS for a while, while I wait till I get approval for my SCS to be out back in permeantly and get a surgery date. I only hope that it doesn't take very long. But time is what I have to wait for.
Well today have been good, went to see my nephew do taekwondo and his mother went with us and he did good. We then went out to supper and had a good time.
I have had to take two pain pills today, I sure hope my surgery date don't take too long.
Guess I'll close for the evening.

5 days since the implanted

It's a quiet house around here today, Andrew is at work. Rory is with his parents for the weekend. We all had supper together last night. My mother was in one of hers mood, but she is 88 years old so I guess that is to be expected. My back is more sore on where the tape is and it's itches like mad. I think in the middle of the night I turn the SCS on, did notice it till this morning. I have cut down on my pain pills big time. My question I will have to ask when I put the machine on, it's like it goes through my whole body.
I can't wait till I can wash my hair and take a long bath. It really hasn't been as bad as I thought it would be. Hopefully it won't take long for them to put it in permeantly.
Here are some pictures of my family.
Well it's been a quiet day my good friend came over and bought me some cookies and then my mom came over for a little while. Andrew is working today, and then going over to visit with his with his sisters. He will be going home at the end of the week, I think. My hubby is doing his last show for the year, he will be coming home tomorrow  for a couple day. My brother's family is doing the relay for life over in Orlando, I usually do it but with my SCS on my back it was a no go for me. Not much else to talk about right now. Write more tomorrow .

Day 4 with the spinal cord simulator

Day 4 not much is going on right now but watching TV. The simulator seems to be working. I go to the Dr on Monday to see how long it will be before they put it in permeantly. The feel of  the SCS is like a electrical current going through your body. It's a little hard to get used to, but it is helping the pain. I just have to watch myself as I have dropped the hand held remote to handle the simulator a couple time. But at least I haven't broke it knock on wood.
My hubby is gone for his last show for the year. He does Florida living history, he is not from Florida originally, but he knows more history about the state I was born and raised here in Florida. He makes his own clothing for the show. I will post some picture today.

During the trial of the simulation

Well I had the spinal cord simulator was implanted on my spine on Tuesday. Things are going good, my back where the leads were put it sore there but other then that e erything is going great. The site started bleeding a little last night, but John said he the think it stops. I go on Monday to get the leads out and see when they can get them put in permeantly. I have all my hopes on this right now. Don't know what it is but I am a little depress. I have the most wonderful husband and friends and family that I could have.
The day is coming to an end and the pain is a minimal, the worst things is the itching, but I can live with that
Will write more tomorrow .

Now just a wake up

This will be short as I am getting ready to go to bed as my big day is here. I have to get up at 6:30 to be at the office by 7:30. I will posted more tomorrow if I am able.

One day and a wake up

It's Sunday morning and I am watching TV. I am not sure if I am doing this right by not being a blogger, I am just trying.
I don't understand why I have to have all the medical problems. No I am not complaining about everything, just don't really understand.
My hubby comes from one of his last show as a Florida frontiersman, he is really good at this. Not being an original Florida boy, he knows history like its the back of his hand. He has always been there for me. We have been married for over 33 years.
Well my husband just got back from his one to next last show. It was kind of sad as a 29 years old young man overweight died there, he had a heartattcked early this morning. The show was for the Order of the Arrow, they had over 1500 young men there. But all in all it turn out well.
Here is a picture of my hubby and myself couple years ago in Oregon.
Well I can't find it right now will try later.

2days and a wake up

It's Saturday and I am not really doing anything but sitting around. My stomach is still mess up for some reason. Nothing good on TV today. Well I will add more to this later but I am going to show the two little ones that my life better then anything could.
This is my son his daughter and my nephew, these of course was taken at Christmas time. Beside my hubby these three's are the light of my world. I want to get where I can play with the two little ones and ride bikes with them and all the other stuff I am not able to do right now. Time to close for night.

4 days and a wake up

It's been a not good day, my nerves have gotten the best of me. My stomach has not been acting very nice to me. I am worried about the procedure on Tuesday and then my nephew who is living with us is trying to decide if he is going back to GA to live with his parents. I have my own thoughts on that and he will need to make up his own mind. Plus my only son is getting marry, but they can't decide on a date and what kind of wedding they want. His future wife has been married before and has a beautiful daughter, we have already accept her as our granddaughter.
Well I have written this three times today, hopefully I can post this one.

5 days and a wake-up

Well just 5 days and a wake before the procedure. I am getting lots of positive feedback to people who has had this done on their back, more positives the negative ones. I have to admit I am getting scare the closer it gets. My back surgeries didn't scare me as much as this one. No real reason just that I know if it works that they will take it out and have to put it back in a month or later. I am scare that next week I won't beable to do almost anything, but I will make it.

5 days and a wake

If you are wondering why my titles are saying about count down, it goes back to my 20 years in the service, yes I retired with 20 years of active duty and I have been out for almost 20 years. My first ten
Years was easy for me but the last ten years were not fun, one of the reason why back is screw up. Take a 100 pound young woman and have carry a minmu of 50 lb with all the gear on and my rack sack on and then walk a 5 miles in Korea up and down hills. It was a long one year in Korea even with my hubby, because we were both in the service and we came on a single tour, we didn't live live together separate housing, or barracks as I would call it. But we survive that the year over there. We came back to the State of Washington and before we knew we had four kids from two differnt family living with and both my husband were in the army and both of us were high rank in the enlisted rank. That a story for a differnt day.
Today is busy for us, first the library and the my lunch with my sister in law and my nephew (Rory)
And then nap time and then taekwondo for late afternoon and then Rory goes home for the weekend and come back on Monday for his weekly visits with us.
My back has been killing me all day and night. The pain pills right now are a joke, I can't wait till Tuesday to get the trial spine cord simulator. Guess I have wrote enough today.

Seven days and a wake up

The week start, I woke up with pain in my legs and pain in my back. Our granddaughter came over for a couple hours while her mother went looking for a job. We really enjoy having her around. I am trying to get the house in order before the day for my procedure.
Not much to talk about maybe later I'll write about soccer game and his taw one do.
Well we had a great afternoon with our nephew and all his activity. I am going to try and upload his new picture.

9 days and a wake up

Today is Sunday, my hubby 66th birthday. We went out as a family last night to a local barbecue place, we had a nice time.  John went out with someone for lunch today, they have the same birthday.
While he was having lunch, he heard of a possible job for my future daughter in law. Their family (my son) really need to have both of them working to survive in today world.
I drove my mom to church, as she gave her call to my nephew who went to Ga for his reserve training this weekend.
 My back is giving me a hard time, along with my knee. It seems like I can't win for loosing. Oh well life goes on.

10 days and a wake up

11 days and a wake up

Took my mom to get her hair done and to go to the groceries shopping. Came home didn't do much else, it's raining outside so back is really giving me a fit. I had a nice conversation with a friend of mine from church, was nice to talk to her. I think tomorrow we are going to go and celebrate my hubby birthday a day early, so my sister-in-law can go out to dinner with us. Not much to talk about today, sorry.

12 days and a wake up till the procedures

Well today I went to see my pain Dr P, to resigned my paperwork for the procedures, be caused it was over 30 days since a signed the first time. The nice DR answered all my questions, hopefully if tis is successful it won't take as long as they are predicting to do the permanent surgery could take as long as 2 months to get on the schedule at the hospital. It's like it might be a long summer for me. I was or should say I am still hopping to go to NC for the summer to spend time at our cabin. Going to be slow weekend no nephews or grandchild. We are going to celebrate my hubby 66th birthday this weekend. And yea I have to do my taxes this weekend.

Two weeks from today I will get the trial simulator

Ok, 13 days and counting for getting the simulator cord simulator implanted for the trial. I have high hope that this will help my pain in my back. Everyone warn me not to have too high hope that I am not disappointed with procedure. But I have done quite of bit investigation on this matter. I just want to be normal and be able to play with my nephew and my granddaughter, with hurting so much the next day that I am not able to move around at all.

March 24 2013 Day one of my journey

Okay I have decided that I am going to blog about my journey with the Spinal Cord Simulator. The D-Day is April 16 for the trail spinal cord simulator will be put in my back for 6 days. If its a successful then they will surgically put it on my back so I can have it for the pain. I have had two back fusion, one 2008 and another one in 2009  

Day after Easter

Well it's the day after Easter. We had our family dinner here with nine of us. Everything went well until... I went out with Rory (4 years old) and Annaleise (18 months) to play in the back yard. Everything was going great till we started playing with the plastic bat trying play t-ball, Rory is a hard hitter and my head knows it now. Yea I got clobber with the bat and it brought blood. I was hollering for my nephew to go get someone ( I have several medical people in my family) to help me along with me hollering, they finally came out to help me and they were walking slow. Supposedly couldn't hear me since they said I had been playing and hollering before. It in up a small cut and a nice goose egg over my eye.
So today, I am sore from playing and from cooking for the family. I did go to church as I had children sermons, so I brought Annaliese and Rory and one of my older nephew who is living with us went with me to church and had a good time.
The rehap center called today to set up a time for a evaluation, but I told them I would wait till after I get the simulator trial done. For me when I do physical therapy it hurts more then it helps right now.
So today it's taw toe and soccer for Rory not sure if  I will go to both or either. Just depending on how I feel.